Additional Resources

Service Providers in Local Area:

The Arc of the Piedmont – Day Support, Residential,  Advocacy Services | (434) 977-4002


CART – Charlottesville Area Riding Therapy – Horseback Riding Therapy | (434) 823-1178


City of Charlottesville – Therapeutic Recreation Program | (434) 970-3264


Fairhunt – Horseback riding therapy in Scottsville


Innisfree Village – A life sharing community in Crozet for adults | (434) 823-5400


JAUNT – Transportation Services | (434) 296-3184


Region Ten Community Services Board – Case Management, Day Support, Residential Services | (434) 972-1800


Virginia Institute of Autism – Day Support, Education, Support Groups | (434) 923-8252


VSA Charlottesville/Albemarle – The International Organization on Arts and Disability | (434) 970-3264


WorkSource Enterprises – Day Support & Supported Employment | (434) 972-1730


Next Steps Behavioral Centers – Applied Behavior Analysis and Early Intensive Behavior Intervention | (804) 596-3275


University of Virginia’s Supporting Transformative Autism Research Initiative – A state-wide resource database for individuals with autism and their families

Commonwealth of Virginia Resources:


The Arc of Virginia – Statewide advocacy and resources
The Arc of Virginia – Guide for Infants and Toddlers
The Arc of Virginia – Guide to Virginia’s Medicaid Waivers
The Arc of Virginia – Guide for Money Follows
The Arc of Virginia – Webinars
DBHDS – Department of Behavioral Health & Developmental Services
DMAS – Department of Medical Assistance Services
DARS – Department of Aging and Rehabilitation Services
DSS – Department of Social Services
Logisticare – Statewide Medicaid-Waiver Transportation Services, (866) 679-6330
Richmond Sunlight – Tracking Legislation in Virginia’s General Assembly
VCU Partnership for People with Disabilities – Virginia Commonwealth University
VDA Guardianship & Conservatorship Guide – from Virginia Dept. of Aging
Virginia Assistive Technology – Virginia’s resource for technology benefits
Virginia Board for People with Disabilities – Information and Advocacy
Virginia Office of Developmental Services – The Commonwealth’s office for ID/DD Services
Woodrow Wilson Rehabilitation Center (DRS) – Rehabilitation and Training Facility, (800) 345-9972
Resources for Military Families
Academic Accommodation Resources
Estate Planning for Parents of Special Needs Kids


News & Resources:


Able Data – Resources for assistive technology
Affordable Colleges – to help you earn your degree without taking on thousands of dollars in debt In 2011, 11% of all students enrolled in higher education reported having a disability, and this growing number indicates that more students with disabilities are enrolling than ever before.  While this is cause for celebration, these students face additional financial challenges in achieving their educational goals.
This guide includes valuable resources for students with disabilities, such as:

  • A curated list of more than 85 disability-specific scholarships
  • Strategies for utilizing state and local financial aid resources
  • An overview of loan forgiveness and reduction options

ADA – Americans with Disabilities Act
AAIDD – American Association of Developmental Disabilities
Apps for Learning Disabilities – 40 Great Apps for Learning Disabilities
Apps for Visually Impaired – Many Apps to support blind and visual impairments
Birth Injury Guide – helpful information and guidance to parents if their child was born with a birth injury
CMS – Centers for Medicare & Medicaid Services
Clemyjontri Park – Super park in McLean, Virginia designed for special needs children
College of Direct Supports – Training resource used by our Direct Support Professionals, Univ. of Minnesota
Council for Exceptional Children – The voice and vision of Special Education
David Pitonyak – Behavior Consultant who offers great training and resources – Federal Government Guide for disability information and services
Disability Scoop – A good source for developmental disability news
Jean Vanier – Founder of L’Arch and advocate for people with intellectual disabilities
L’Arche USA – Communities in Arlington (Greater Washington) & Lynchburg
Learning Disabilities of America – Advocating for individuals with learning disabilities
Maintaining a Manual or Power Wheelchair – Guide from State of Wisconsin
March of Dimes – Resources for stronger and healthier babies
Morgan’s Wonderland – World’s First Amusement Park for People with Disabilities
Museum of Disability History – History resource
National Disabilities Rights Network – Protection and Advocacy for Individuals with Disabilities
NIMH – National Institute of Mental Health
Social Security Administration – Disability Benefits
Special Chronicles – Podcasting a message of respect and giving a voice to those with special needs
Sprout Film Festival – Short Films highlighting ID/DD issues
Therap – Secure On-Line Records, Communication, and Programming System used by our Arc chapter
Very Special Camps – A national listing of Summer Camps serving special needs

Resources for Autism & Autism Spectrum Disorder:


Aspergers Syndrome – OASIS & MAAP website
Autism Action Groups – Parent and Family Support Groups across Virginia
Autism Now – The National Resource & Information Center
Autism Research Institute – Leading in research and supports for Autism
Autism Society – The nation’s leading grassroots organization for Autism
Autism Speaks – The nation’s largest advocacy and science group in Autism
Commonwealth Autism Service – Great Virginia resource and training for Autism
CRAAG Resource List – Charlottesville Region Autism Action Group Resources
National Fragile X Foundation – Fragile X Syndrome
Interactive Autism Network – Linking the Autism Community and Researchers
Top 25 Autism Blogs – Information and Social sharing communities
VCU Autism Center for Excellence – Virginia Commonwealth University
Virginia Autism Project – Grassroots coalition of families in Virginia
Wise Old Sayings – Communicating with an Autistic Child: A Parent’s Guide
Sesame Street Autism Resources for Parents

Resources for Cerebral Palsy:

My Child with Cerebral Palsy – The Ultimate Guide to Cerebral Palsy
United Cerebral Palsy – Education, advocacy, and support for cerebral palsy
Cerebral Palsy Guide – Information regarding treatment options and support groups for those with CP
Cerebral Palsy Group – Improving the overall quality of life for individuals with cerebral palsy

Resources for Down Syndrome:

National Association for Down Syndrome – Advocacy and information about Down Syndrome
National Down Syndrome Congress – Advocacy and information
National Down Syndrome Society – Advocacy and education about Down Syndrome
Shifting Perspectives – Positive Photography and Video Exhibit
TheXtra21 – Blog about raising a child with Down Syndrome

Resources for Other Developmental Disabilities:

Angelman Syndrome Foundation – Angelman Syndrome resources
Cri Du Chat Syndrome – Information and Support from group in Australia
Cornelia De Lang Syndrome – Resource for rare syndrome
Epilepsy Foundation – National advocacy and information group
NOFAS – National Organization on Fetal Alcohol Syndrome
Prader-Willi Syndrome – Prader Willi Syndrome Association
Rett Syndrome – International Rett Syndrome Foundation
Schiz Kids Buddies – Schizencephaly Disorder
Sensory Processing Disorder – Sensory Processing Disorder Foundation
Spina Bifida – Spina Bifida Association
Trisomy 18 – Advocacy, Support and Research


Virginia’s Intermediate Care Facilities:

Virginia ICF-ID – State website for ICF-ID
Federal ICF-ID – Medicaid website for ICF-ID